They Call Me Galvez

Movies have always been my preferred mode of entertainment and an “escape” to another reality. Reading books also fulfilled this need for entertainment, but it is very time consuming because I’m a slow reader. For a little while, watching TV was great, but has become depressing with an abundance of commercialism and so much negative news. Yes, people need to be informed about what is going on and informed about what products/services are available, but sometimes you just need a break. Movies on Netflix got me through the first few years of brain tumor survivorship since my mobility was limited and I had a hard time physically leaving my apartment. Going to the movies has been the only constant. When I was younger, my dad used to take my brother and I to movie matinees all the time on the summer breaks. He also used to take us on weekly trips to video stores/ Meijer to rent movies. Watching the original Star Wars Trilogy, Rocky III, Rocky IV, the Back To The Future Trilogy, and the original Karate Kid were huge influences on me! My addiction to movies continued throughout high school and college because most of my dates involved going to movie theaters or watching movies on VHS/DVD. Now I go to movies by myself because: 1) it’s too hard to coordinate times to get people together and 2) I have MoviePass so I get to go to one movie/day.

For the year, I have already broken even on my $90 yearly MoviePass membership.  I have seen 14  movies in 3 months! That on top of a Netflix subscription means I watch A LOT of movies. I enjoy going to matinees because the theaters are less crowded and therefore easier to find a good seat.  I tend to gravitate toward comedies and action movies.   Since I am a HUGE comic book geek, my favorite movie so far this year has been Avengers: Infinity War.  Although I’m an adult. I’m also fascinated by a good animation movie.  The amount of time and skill it takes to piece together each individual frame/shot of a cartoon character’s speech and movements is AMAZING!  The last great animated film I watched in the theater was Moana.  It was so cool to see cartoon characters who actually reminded me of my family.

The summer blockbuster season is starting, so I’ll probably be ramping up my trips to the movie theater.  Wanna join me?  Maybe I’ll start reviewing them…

I was looking at a bunch of old posts and I realized that what I’m doing is crazy!  Going back to school in a completely different profession with some pretty severe impairments is pretty ambitious.  I’m still testing my limitations but figuring out how to address them.  I always have intentions to blog, but I routinely get side tracked.  I got lost last semester in academic work.  I feel like it is an uphill battle learning new material/concepts with short term memory impairments.   Academically,  new concepts are stored in short term memory unless they are applied.  This is part of the reason why I’m having difficulty returning to school.  I need to apply what I read or see.  In physical therapy school, labs were very useful to me to experience direct application of techniques and concepts.  I’m more of an experiential learner.  Reading puts things in my short term memory, but now my short term memory is impaired.  Studying for quizzes and exams is now more time consuming.   I’m taking 2 web based classes this summer semester which are self paced, but we will see how that goes.

It has gotten harder to meet new people in Houston because when people meet me for the first time, they see the scooter and all my physical impairments.  “All-the-things-I-can’t-do” is now the first impression  me.  I have learned that in order for people to see past my impairments, I need to look past them myself.  It is much tougher to meet new people because I’m limited by my mobility, it takes me a long time to get anywhere via public transportation so it is much harder to drop in on somebody.  Most of the time, I get to hangout with old friends in Houston.  Hanging out with new people is much tougher than I anticipated.

Physical/Cognitive impairments have surfaced as major challenges in a new academic environment.  I’m definitely re-creating myself again, but this time it is much more challenging because at least last time I had an idea of how to address challenges/obstacles as a PT. The social sciences is completely different from what I am used to.  I’m learning more about myself on the fly. Addressing new physical barriers (sidewalks/extreme rain/extreme heat), unfamiliar academic challenges, and being “the new guy” has made things interesting.  This “kick in the head” is exactly the challenge I was looking for.  It’s all about adapting to the new challenges… stay tuned.

I was expecting a return to academia to be challenging, but it has been much tougher than I anticipated.  Impairments that were potential issues for me when I was starting my journey into life as a brain tumor survivor are resurfacing as new challenges in a new environment.  The most shocking impairment for me is short-term memory loss.  I’ve been able to hide these deficits with technology and putting things in my long-term memory, but has been exposed in a formal academic setting. Learning new materiel/concepts for quizzes and exams in a classroom environment with time constraints is more difficult to get stored into my long term memory.  My memory is not completely horrible, but there is definitely difficulty remembering things that are presented to me for the first time.  Initially, I attributed it to old age or the lengthy break from school, but I noticed that things that I read don’t “stick” as easily as they did before.  I did recall that on a neuro-cognitive test after brain surgery, one of my physicians mentioned a “mild cognitive impairment”.  I’m trying to locate the official note now.  “Chemo brain” or other memory impairments are probably reasons why many of survivors don’t return to school.  My long term memories are still intact, but my short term memory is definitely impaired as evidenced by my performances on in-class quizzes and exams.   This has been extremely frustrating!  I’ve been able to compensate short memory deficits with:  the use of my smart phone to jot down notes/reminders, a lot of repetition, and concrete application of new material.  When I first started down this ambitious path of returning to school as an older student I remember thinking, “You can’t teach an old dog new tricks.”  I think a more correct approach to take is, “How do you teach an old dog new tricks.”  Starting a program in a new professional discipline is tough, but combining that with cognitive and physical challenges is VERY difficult.  I’m trying out different learning strategies to see if that will help retain new memories.  I’m trying not to get discouraged by my poor academic performance, but this is very frustrating and a huge blow to my confidence.  I can only imagine what this does to the confidence of a pediatric, adolescent, or young adult patient with short term memory issues who is just starting to create his/her identity.  I’m starting to gain in-depth understanding of the issues neurology patients with memory impairments must face. It’s been a very “eye opening” experience. I’m starting to wonder if returning to school was the right move… why do I need to get another degree?  My goal in returning to school in Houston was to do research and make connections.  I am meeting a lot of people in the Houston Disability Advocacy community through the Independent Living Research Union at the The Institute of Rehabilitation and Research.  I am trying to figure out my next move.  Do I spend all the time and energy to get another degree?  Or do I apply my experiences to the disabled/brain tumor community?  If my long term memories are still intact from before the surgery, I still have my physical therapy knowledge and leadership knowledge… I can still apply that prior knowledge to everything I’m doing now and planning to do in the future.  Just have to decide which professional path to take…

The return to Michigan for the holidays was different this year.  Not only was I staying for two weeks, but I was also returning as a student.  Whenever I come home, I always get nostalgic, but at the same time I get this urge to clean things out.  I found a bunch of old pictures and miscellaneous items in my room that brought back some memories. Sadly, I think I’m the only one that wants to throw things out.  My brother and Mom are packrats and have managed to build quite a collection of things since I’ve moved out over 20 yeats ago!   Lots of things pile up and there are plenty of arguments about what to keep!  I’m not sure this is a battle I can win.  We finally got rid of: an old 200 pound trinitron TV, my old scooter, and some junk moved out of our house.  I did find some old CDs and DVDs I can still use in Houston.

I always go to the movies with my dad whenever I come to Ann Arbor.  My bro, my dad, and I saw The Last Jedi the day after I arrived.  Only fitting because we saw Return of The Jedi together in 1983.  That movie solidified my geekiness and also turned me into a fan of seeing films movie theater.  Anyways, we also saw Jumanji: Welcome to the Jungle but my curiosity was piqued after the movie.  We saw the movie in “D-box” seats.  They basically are seats that are synced up with the movie and move/shake with the action.  I did notice something interesting… I usually have trouble using my crutches walking out of the theater after being seated/stationary for hours.  After experiencing the movie in the d-box, I was able to use my crutches to walk out of the theater.  This got the physical therapist in me thinking… Was I less tired today?  Was the outcome a result of specific environmental conditions?  Was the increased sensory input affecting my balance?  Was it simply the result of being stimulated for 2 hours instead of sitting like a bump on a log for 2 hours?  Will the same effects happen again if I watch another d-box movie?  Will have to continue this experiment in Houston… HAPPY NEW YEAR!

I think I may have bitten off more than I can chew.  I moved to Houston in August to go back to school in the hopes of pursuing a PhD in Public Health.  It has been quite an adventure since I’ve moved.  Just getting my stuff here was a huge ordeal!  Dealing with movers and the weather was much more expensive than I budgeted.   Hurricane Harvey flooding complicated the delivery of my things.  The move was supposed to cost me an estimated $1700, but it ended up costing $3000!  I missed the first week of classes waiting for my furniture to arrive, so I was already behind academically.  This was a very big issue because returning to school as an older student with a physical disability definitely was going to be very challenging.   The fact that my background is not in the social sciences AND the fact that the program is in “Health Promotion and BEHAVIORAL SCIENCE” definitely has made the transition more challenging.   I was prepared for the “Health Promotion” aspect of the program through my work with mAss Kickers Foundation, but not the “Behavioral Science”/ psychology aspect of the degree.  Good thing that this was caught early on.  The combination of a lengthy break from academia and a weak background in social science research led to the decision that maybe I should pursue an MPH in Behavioral Science and Health Promotion instead of struggling through a PhD program.  Will have to consult more people… The intent to pursue a degree in Public Health is still there, but maybe a PhD is not appropriate yet.  For the first time in a while, I am not able to do what I want.

The reality of the situation is frustrating, but all is not lost.  A few weeks ago, I met Lex Frieden.  He is “a chief architect of the Americans with Disabilities Act” located in Houston.  I am very excited to announce that I have the opportunity to work him next semester at the Texas Institute of Rehabilitation and Research (TIRR).  It will be an excellent opportunity to learn more about disability advocacy directly from him and apply my rehabilitation/non profit knowledge to his current work in rehabilitation research.  Most of my focus since my brain tumor diagnosis has been on oncology related issues.  I have done a few things in the disability community, so I’m very excited to learn from Dr. Frieden and get more involved in rehabilitation research.  I still am very interested in the role of physical activity/exercise in tumor/cancer survivors, but I think that physical disability and exercise/physical activity could be another factor worth studying… You can’t always get to do want you want, but you have to be resilient and be able to adapt.  Things have been challenging since I’ve been in Houston, but I’m starting to adjust…

Hurricane Harvey came and left a lot of flooding in Houston.  I was very fortunate to get out of Houston when I did!  I would have been extremely bored sitting in an empty apartment all by myself with no TV, nothing to do, and the high potential for flooding/losing power.  I live close to Bray’s Bayou, so I was a little nervous about the potential for flooding.  With that in mind, I hopped on a bus to Dallas the day before the hurricane.  I was like “Class 4 Hurricane… I’m outta here!”  Dealing with a big storm  alone, no furniture/TV/entertainment, in a new city, with a physical disability… didn’t make sense for me to stay in Houston.   The bus ride to Dallas wasn’t that bad… I wasn’t in a hurry (took 4 hours) AND I got to experience downtown Houston for the first time! Very different from San Diego!  My friends picked me up in Dallas from the bus station and we went straight to a Mexican restaurant to get Tex-Mex Food.  Thus began my Dallas “Eating Quest.”  Dave’s parents from the Houston area were also in Dallas to escape Hurricane Harvey.  Mrs Chen is a phenomenal cook, so I was definitely well fed in Dallas!  I realized very quickly, that if I don’t check myself here, there is very large potential to gain a lot of weight!  Anyways, I finally returned to Houston the Friday after the hurricane flooding.  I was very lucky to come home to a dry apartment, but my furniture was still not there.   Thanks again Becca, Dave, lil Ethan, Mr. (now Uncle) Chen  and  Mrs. (now Auntie) Chen.  I feel like I have “family” now in an unfamiliar place.  I rode back to Houston with Uncle and Auntie and we stopped at this incredible BBQ restaurant Woody’s Smokehouse at a rest stop off the freeway!  A rest stop!  The BBQ Chicken, brisket, and smoked sausage were AWESOME! I couldn’t believe how crowded this rest stop was! As we drove through Houston, we could see the devastation pilled up outside of homes in the form of ruined furniture/personal items.  It is sad to think that many of those items were probably not covered by flood insurance… total loses!  I have been very impressed with the response and hospitality of the community in Houston post Hurricane Harvey.  Complete strangers offered me help, water/food, and assistance.  I definitely experienced the “Southern Hospitality”.  It is very easy to reciprocate the hospitality, but at the same time it is necessary to keep your guard up!   I’ve always been a quiet guy, but in the past few years I’ve been reborn as a patient advocate and nonprofit professional.  This rebirth has spurred my desire to become an advocate for those who are underserved or taken advantage of.

My first month in Texas has been full of curveballs, but over the past decade I’ve learned how to adapt to new challenges.  Just need a clear head to make solid decisions. I came back to the apartment in Houston WITHOUT flooding (which was a big relief), but I was powerless to do anything about my lack of furniture.  I came back to a dry but empty apartment.  I still didn’t have any furniture or extra clothes.   I was starting to get frustrated by the delays, and posted something on social media about it. Apparently someone called the movers and was extremely rude to them.  I appreciated the support, but the fact remained that they still held my stuff.  The first thing I did when I returned to Houston was buy a nice rug and borrow an air mattress. Hurricane Harvey was so severe that the start of school at UTHSC in Houston was delayed one week.  There was flooding at MD Anderson Center Cancer, and the roads were flooded to the hospital!   This was very important because how were people who needed medical attention supposed to access it?  How would the medical staff still at the hospital return to their families with all the flooding?  I’ve already heard stories of staying at the hospital and working extra shifts.  I also heard a story of a physician canoeing to work!  Crazy…  It was an adventure in itself trying to move my things from San Diego to Houston, but having no control on the delivery of my things amidst a natural disaster was extremely stressful!  My furniture finally arrived in Houston last week after almost 4 weeks and numerous delays!   This was very frustrating because the office would tell me that they would arrive on one day, but the movers would tell me something completely different  In addition, I was charged for storage, unloading/ re-storage at the holding facility, and redelivery to Houston!  The price of the move was already inflated, so more unexpected fees made things more expensive! I will definitely go through a BBB moving company, not a broker next time! Lesson learned.  However I still don’t understand why I was charged an extra $500 for storage, unloading/reloading, and redelivery due to a natural disaster that no one had control over.   No one could get into Houston the Wed after the hurricane… that’s part of the reason I wasn’t there!   I’m happy my stuff finally arrived and I can finally start focusing on school!   I can already forsee challenges with returning to school in a different academic discipline and a physical disability.  Mix in the unpredictable weather and mobility issues and things will be very interesting!  Rain and thunderstorms are in the forcast this week… I’m gonna get wet!  Bring it on!  LET’S ROCK THESE NEW CHALLENGE

Things are definitely not boring!  The transition back to school has been hectic.  First off getting to Houston from San Diego has been an adventure.  The movers came to pick up my stuff from San Diego, and the price jumped up from $1700 to $2500 because I had more stuff then I was originally quoted.  They changed me for an extra storage pod.  I had extra items that weren’t listed, but I didn’t have huge items to pack. The biggest items I have are: my desk my TV/TV stand, a big book shelf, a dresser, my old wheelchair, a table with 4 chairs, a mattress/box spring, bed frame, and a few extra boxes.  I think on my quote I had listed 15 boxes, but some of my furniture (shelf, dresser) were classified as bigger than expected, jacking up the price. I don’t think I had that much stuff.

To make matters more complicated, the weather in Houston has been crazy! Rain and flooding is at a 500-year level high in Houston.  Luckily, I was able to take a Greyhound bus to Dallas on Friday to avoid the flooding in Houston.  Apparently the Brays Bayou by my place close to the med center floods frequently.  This sucks because I need to be in a first floor apparent due to the fact that there are no elevators for my scooter.  My place is probably flooded due to the storms.  Good thing is my stuff hasn’t arrived in Houston yet.  I’ve been calling to figure out where my stuff is, but they close at noon on Fridays.  I’ve left messages and am still waiting to hear back from them since Thursday.

The biggest dilemma for me is… when to return to Houston.  It is supposed to continue raining till Friday.   Navigating the city will be complicated if public transit is still down.  Maybe I invest in a canoe… seriously. Classes got cancel this week, they resume next Tuesday.  Hopefully, things will clear up (dry up) by then.  I wonder what the water levels will be like and when it will be safe to go back!  Turns out that the movers might charge me more for storing the items due to the inclimate weather.  We shall see.  I’m hoping to get my stuff soon when I return to Houston!  Moving and evacuation has definitely made this transition memorable.  I’ve been through tornados, earthquakes, fires, and now hurricanes and floods.  Lesson here is that if there a difficulties with physical mobility… get out early if you can to avoid potential issues…It helped that I knew some people outside of Houston.   I really would have sucked being stuck in Houston with no tv service, phone service, spotty internet, questionable power sources, and mobility impairment.  I really don’t know what I would have done if I hadn’t gone to Dallas!  Thanks again Dave Chen, Becca Wong, and family!  We will see when my stuff finally arrives in Houston… first order of business when I get back to Houston is get a couch to sleep on… not a leather couch because I will stick to it!  School starts next week!  Stay tuned… I’m sure more exciting stuff is in the works.  It has been a very eventful 2 weeks!

It has been a crazy transition to August. I had my first final in 14 years!  Crazy preparing for it.  I think my short term memory is horrible, but my long term memory is still very good.  Ask me if I remember specific scenes from the original Star Wars Trilogy… Anyways, I figured out that I have to commit things to long term memory to do well on exams/quizzes.  Problem is that the process of saving things to long term memory is a very intensive process… going over things thoroughly 4 or 5 times, instead of once or twice.  Couple minor short term memory impairments with the physical impairments of tremors/ataxia/minor double vison/ minor speech dysarthria and you have some major obstacles in the classroom.   Based on my experiences in the summer session at UCSD, I think they can be addressed:  Extra time to take quizzes/exams, use of a laptop, seating in the front of the classroom, and a note taker or presentation sharing.  Technology is great… I use my smart phone to set reminders/alerts and create “to do” lists to address short term memory lapses.  (Maybe I’m just getting older… hee hee hee…)

Anyways, I started cleaning out my place in San Diego this week and started shipping stuff to Houston.  Again, I get to be the new guy.  I’ve become very familiar with that role.  To me, it’s kind of exciting to start fresh and test yourself against new challenges.  It’s like starting with a clean slate… No body knows you, and you don’t know anybody.  I do know a few people in Houston, so the transition will be a little easier than my transition to San Diego from Michigan.  In San Diego, I was immersed with many peers in similar life stages developing their professional lives.  With this return to school in a new environment, I’m not so sure I’ll find people in similar life stages.  I’m gonna be the oddball. Professionally this move makes sense, but the task of finding new peers to hangout with might be challenging.

Developing a strategy for adapting to a new environment is half the excitement for me.  Planning and training feed my Type A Personality, but socially I’m very laid-back.  That is a very odd dynamic.  I like working with “Go-getters”, but I like to hangout with people who are “chill” and laugh at everything.  A strategy for a return to school is starting to form.  The goal is to publish more peer-reviewed articles.  I’ve published independent articles from my perspective, but I need to strengthen my scientific writing.

I’m leaving for Houston on Friday morning to start a new adventure!  I move into my apartment in Houston on Friday!  2 more days in San Diego!  Gotta grab a California Burrito and a Habit Burger before I leave!

I can’t believe the semester is over next week!  The semester flew by! I was just getting back into my “student groove”…

I’ve learned a few important things…

1. I have difficulty physically taking notes in class.  Need assistance.  I write main points, but it is a crap shoot if I will be able to read them later!
2. Writing is still illegible, actually worse. It was bad before, but it’s pretty bad now!  Typing is slow because I can only use one hand.
3. I need to sit in front of class to avoid distractions.
4. Review lecture readings text twice before class.
5. Sleep early… no TV till the weekend… luckily no football in the summer… this is why I like watching movies in the summer…
6. Eliminate distractions… BYE BYE FACEBOOK!
7. Caffeine can help delay the need for an afternoon siesta, but I crash hard!
8. Quizes/tests require extra time.  Need extra time to make accommodations to comprehend (minor double vision issues) + respond with typing/emailing my answers…
9. Participating in discussion is sometimes difficult due to mild speech issues.  I’m better in one on one/small groups.
10. I like listening to movie soundtracks, Rat Pack/Big band, and classical music when studying…

I’m wondering how other students with physical disabilities address classroom issues.  I’m still pretty sure my cognition is intact, but I think the physiological challenges of returning to class can be addressed!

The first week of school went well.  I feel so old!  I think that I graduated college before some of my classmates were born!  (technically, I could be their father…) HAHAHA!  I thought I stuck out before… now I really stick out! (I look and act young, but have the soul of a 60 year old.) I actually contacted the Office of Students with Disabilities  (AKA “OSD”) before the first day of classes to make sure the process of going back to school was an easy transition.  They were very accommodating! They were able to get me a note taker for lectures, private testing spaces for exams, and priority seating in the front of the classroom/lecture hall to eliminate distractions.  Luckily the campus is very wheelchair accessible.  Some of the older schools I’ve visited are not as handicap friendly.  In-class quizzes for my “psychology in healthcare” class are only 10 mins, but I’ve discovered that it’s very difficult to read/process all the multiple choice answers on the projector.  I’ve found that 45 seconds is not enough time for me to visually/cognitively/physically process the questions and select the correct answer.  Writing for essay quizzes in my other class will be done on a lap top, and immediately emailed to the professor.  I had to follow up with the Disability Office after my first set of classes to let them know how things went.  The cool thing is that this process is completely confidential between the professor, OSD, and the student!  I really don’t care because I can’t hide my disability… It’s something all survivors in college SHOULD look into!  For the first time since rehab I’ve confirmed how serious my physical impairments are!  I guess for the longest time I’ve been focusing on what I can do, not what I can’t do.  To actually see the reality of my physical impairments in writing by people that I don’t know is still a huge wake up call because this is how strangers see me.  When I first went out in my wheelchair, it used to bother me when people used to stare at me.  I could feel all the looks of curiosity and pity.  It almost made me feel ashamed to go out.  Good thing I have no shame… People that I hangout with say that this still happens when I’m in my scooter/wheelchair, but I’ve learned to simply ignore the stares.

Anyways, I’ve really noticed that academic/scientific journal writing is very different from public publishing.  While I was in college and grad school, I had been so used to reading academic articles.  My friends who helped edit my first book, had so many publishing suggestions on my first draft of Reversal:  When A Therapist Becomes A Patient.  For one of the classes I’m currently taking, I have to read a lot of psychology journals.  Typically, scientific journals are different to read with many run-on sentences.  Those run-on sentences are intended to elaborate on key concepts.  It is just another adjustment back into academics that I have to adapt.  Things will get interesting the next couple weeks with classes and exams/quizzes.  These last few weeks in San Diego are going to be BUSY before I move to Houston!  ComicCon is coming up in a couple weeks, so I’ll be sure to make time to get downtown then for the festivities!!!