mAss Kickers news


Blog and housekeeping and mAss Kickers news23 Nov 2017 01:31 pm

I think I may have bitten off more than I can chew.  I moved to Houston in August to go back to school in the hopes of pursuing a PhD in Public Health.  It has been quite an adventure since I’ve moved.  Just getting my stuff here was a huge ordeal!  Dealing with movers and the weather was much more expensive than I budgeted.   Hurricane Harvey flooding complicated the delivery of my things.  The move was supposed to cost me an estimated $1700, but it ended up costing $3000!  I missed the first week of classes waiting for my furniture to arrive, so I was already behind academically.  This was a very big issue because returning to school as an older student with a physical disability definitely was going to be very challenging.   The fact that my background is not in the social sciences AND the fact that the program is in “Health Promotion and BEHAVIORAL SCIENCE” definitely has made the transition more challenging.   I was prepared for the “Health Promotion” aspect of the program through my work with mAss Kickers Foundation, but not the “Behavioral Science”/ psychology aspect of the degree.  Good thing that this was caught early on.  The combination of a lengthy break from academia and a weak background in social science research led to the decision that maybe I should pursue an MPH in Behavioral Science and Health Promotion instead of struggling through a PhD program.  Will have to consult more people… The intent to pursue a degree in Public Health is still there, but maybe a PhD is not appropriate yet.  For the first time in a while, I am not able to do what I want.

The reality of the situation is frustrating, but all is not lost.  A few weeks ago, I met Lex Frieden.  He is “a chief architect of the Americans with Disabilities Act” located in Houston.  I am very excited to announce that I have the opportunity to work him next semester at the Texas Institute of Rehabilitation and Research (TIRR).  It will be an excellent opportunity to learn more about disability advocacy directly from him and apply my rehabilitation/non profit knowledge to his current work in rehabilitation research.  Most of my focus since my brain tumor diagnosis has been on oncology related issues.  I have done a few things in the disability community, so I’m very excited to learn from Dr. Frieden and get more involved in rehabilitation research.  I still am very interested in the role of physical activity/exercise in tumor/cancer survivors, but I think that physical disability and exercise/physical activity could be another factor worth studying… You can’t always get to do want you want, but you have to be resilient and be able to adapt.  Things have been challenging since I’ve been in Houston, but I’m starting to adjust…

Blog and mAss Kickers news23 Sep 2016 03:36 am

2016-htkm-now-cool_ericI’m an 11 year brain tumor survivor with severe physical impairments. The last decade has been a crazy ride! I have gone from doctor of physical therapy to brain tumor patient with physical disabilities; brain tumor survivor to brain tumor advocate; and advocate to nonprofit professional! I’m not done yet… ;P

I’m planning on taking 3 “post-oncology treatment thrivers” that embody the SPIRIT of mAss Kickers Foundation to present in Cape Town, South Africa.  We will be presenting about a proactive life after a tumor/cancer diagnosis at health care education schools, to charity organizations, and to survivor groups Nov 9 -16. We believe that we need to approach these diseases with more intelligence, heart, and humor.

Please consider a donation to support our 2016 efforts to educate people in South Africa about a proactive life after a tumor/cancer diagnosis… THERE IS A STIGMA OF SHAME/GUILT/EMBARRASSMENT ASSOCIATED WITH A TUMOR/CANCER DIAGNOSIS. HELP US SHOW THE WORLD THAT SURVIVORS CAN PICK OURSELVES UP AND THRIVE AFTER A TUMOR/CANCER DIAGNOSIS!

The 4 survivors participating in this tumor/cancer “thrivership” mission are very excited to travel to an exciting new place, but we need YOUR HELP TO FUND THIS!

Please help me reach my fundraising goal! The San Diego based cancer research company, Ignyta Inc. will match donations up to $3000. This is a GREAT WAY OPPORTUNITY TO SUPPORT US!  We will definitely send you a video shout out from Cape Town!

Help us teach the WORLD how to “Kick mAss!” Pass this on!

Thanks,  Eric

Blog and housekeeping and mAss Kickers news16 Nov 2015 04:47 pm

1It’s funny. I thought things would be slowing down this month since I’m not traveling, but things are actually getting busier!  I’m already starting to set stuff up for next year.  There are plans to do more traveling internationally, but we need a more consistent source of revenue to take more post-treatment “thrivers” on these trips.  The purpose of these trip is to promote a proactive life after a tumor/cancer diagnosis and dispel the international stigma that a tumor/cancer diagnosis is a death sentence.  Right now, your donations are supporting MKF activities.  In order for MKF to grow, there needs to be a more formal staff to manage everything.  I’m realizing that the type of assistance MKF needs requires hiring someone!  The direction MKF is heading is WAY out of my professional expertise!  Early on my vision for MKF needed to be established and I took on much of the work/responsibility myself.  I think this is typically called “Founder’s Syndrome“.  The problem now is finding reliable people who want to make the organization grow.  Finding people with the same passion is not difficult because people generally don’t like tumors/cancer.  But when personal responsibilities start to arise, it is hard for people to make time for the organization.  Herein lies the problem, at this point in the organization’s life span, we need to hire formal staff.  The staff at this level require a salary, but funds/donations still come in inconsistently.  Getting MKF this far, took a lot of blood, sweat, and tears. I’m realizing now that I may not be the right person to lead MKF into the next stage of organizational growth.  We’ve been stuck in the “Adolescent/Growing phase” for quite some time.  I think I might be too “emotionally invested” in MKF.  I just want to make sure MKF is left in the right hands.  I’m getting ready to add more teammates because I’m realizing that one person alone can’t handle everything!  I’m starting to think partnerships with the right organizations will be key for MKF in the future.  Please contact me through mAssKickers.org if you are interested in formally helping with MKF.  Be prepared to share a resume/references.

housekeeping and mAss Kickers news02 Nov 2015 11:57 am

rehab10 years ago today, I left the intensive care unit after major brain surgery with a new attitude. I was a pretty happy-go-lucky guy before the surgery, but I came out the ICU more focused than ever before!  I was still recovering, but I made the decision that I wasn’t going to be defeated by a brain tumor.  I just needed to find a way to fight back!  I lost my career working as a physical therapist, the majority of my hobbies, and very briefly my confidence.  Over the past 10 years I’ve built myself back up and:

  • published articles in a number of magazines/news letters
  • published two books,
  • created a unique non-profit,
  • spoken at universities/ physical therapy programs around the United States,
  • spoken at universities in 3 continents,
  • spoken at conferences across the United States,
  • given a keynote speech at a physical therapy graduation ceremony,
  • given keynote speeches at 3 conferences,
  • promoted “post-treatment thrivership” to countless survivors and healthcare professionals around the world!
  • I have a few more things in the works… STAY TUNED!

Please support my passion to educate the WORLD ABOUT A PROACTIVE LIFE AFTER A TUMOR/CANCER DIAGNOSIS by making a secure Paypal donation to mAss Kickers Foundation. 

Blog and mAss Kickers news and reviews19 Oct 2015 05:44 pm

The 2015 Celebration of Life was this past Friday.  A group of tumor/cancer survivors created this event five years ago to say thanks to the people that were there for us during the most difficult times in our lives:  our family, our friends, and fellow survivors.  This year Patti McDonald, Vi Ariola, and I did the toasts.  We showed the latest Tumors Suck videos.  It is getting harder to get people together because everyone is very involved in a variety of different organizations, most notably: Relay for Life, Leukemia and Lymphoma Society, Stupid Cancer, and First Descents.  We welcome ALL to come and celebrate another year together!  The purpose of the “Celebration of Life” is to formally say thanks to the people who were there for us in the most difficult times in our lives!  We rarely get to do that.  I don’t think I ever officially said “thanks!” to all my supporters.  We formally recognized them by honoring them with toasts.

Something strange happened that night…  I’ve noticed that I always get choked up whenever my family is there for a presentation!  My mom, my dad, and my brother went through so much because of me.  It is very humbling.  Somehow I got them to write “essays” about their experiences with having a loved one going into surgery!  Very surprised they did it!  When they aren’t present for a talk, I’m fine.  I still can’t believe how strong they were for the situation I put them in!  I’ve spoken at numerous universities, hospitals, ceremonies, and events all over the world, but put me in front of the people that were there for me when I was “lost”… I get very emotional.  I can’t help it! I was confused, scared, and for the first time in my life not confident.  I’ve noticed that I now wear my emotions on my sleeve, which is funny because before surgery, I was a very stoic guy!  When I’m excited about something, you can tell. I’m also more apt to have an emotional responses to heart-wrenching stories.  I always blame my “allergies” when that happens.  The past year was particularly tough losing a couple close friends to brain tumors.  It does not get any easier.  There is a part of me that realizes how close I was to leaving this world or having severely debilitating side effects.  It is very humbling.  I strongly believe that my prior and current physical activity level played a very large role in my survivorship and subsequent “thrivership”.  I’m VERY interested in WHY my survivor friends who are physically active tend to do better after treatment.  I’m very curious.  The human body is not supposed to be stationary. I think that there must be some relationship between physical activity/exercise and post oncology treatment quality of life.

Anyways, after a very busy September of traveling, I can finally rest!  Actually this week, I’m experimenting with the Google hangout in a classroom setting.  I’ve done it a couple times, but I’m still trying to perfect it!  Then I can rest!  I will try to take some screen shots and post it on facebook!  Starting to plan MKF activities for next year!

Blog and mAss Kickers news18 Sep 2015 07:51 pm

September has always been a month full of excitement… the start of school, the start of football season, the baseball pennant race starts to heat up, cool (but not cold) weather, cider mills… so much to get excited about!  This year I started September on a plane to Brussels.  Check out the pictures and videos from our trip.  Blogs should be coming soon from participants!  Check mAssKickers.org soon.  It was an EPIC trip!  mAss Kickers Foundation took 4 post oncology treatment thrivers to Belgium and made some great connections in Europe.  We will definitely be returning to Europe!

2015 Celebration of Life flier_edited-3To close out September, I’ll be traveling to the University of North Carolina at Chapel Hill to look at a PhD program.  Just exploring my options, but I’m always up for a new challenge.  I’m lecturing at the PT school, then visiting their PhD program.  I’m very excited to visit Dr. Claudo Battaglini’s lab and the “Get REAL & HEEL” Exercise/Physical Activity Program for Oncology patients.  I’m excited because I’ve never really hung out in the Southern East Coast and I have family and friends around UNC!  Should be an exiting end of the month!  October is is going to be a very packed month as well!  We have our Celebration of Life event on October 16, where survivors formally thank the people who were there for them with toasts!  I’ll be giving the final toast of the night and celebrating my 10 years of meningioma brain tumor survivorship, so hopefully many of the people who were there for me can make it so I can formally thank them!  SUPPORT US HERE!

Blog and mAss Kickers news10 Aug 2015 09:31 am

2015 tspb flier2The past 2 weeks have been packed!  I went home for the 2015 TUMORS SUCK! Paintball Benefit in Pinckney, MI.  There were more kids this year and all the paintball teams do a great job making sure everyone has a good time. Under the leadership of Angel Bureau, Andy Wlodyga, and the “Mitten Men” the event has grown even bigger.  It is always great to see people unite for a great cause!  For parents, it’s a unique way to PLAY with you kids/family.  The speed of the paintballs was turned down and the age limit was dropped to 6 years old to make the event more friendly to the “newbies” and more become more family oriented!  It was great to see quite a few parents playing with their kids this year!  It is definitely a unique way to do a family fun event!  This year there were 2 paintball “tanks”  where survivors could go out onto the field and shoot their paintball guns at people without return fire…  “FEAR THE TANK”.  It was great seeing families having fun doing something unique together! I give props to the all the moms and dads that played paintball with their kids!  HAHAHA!  Parents are always cleaning up after their kids.  It’s not often that parents get to have fun getting messy WITH their kids!  It definitely was cool seeing the kids having fun for a good cause!  We are creating a new generation of mAss Kickers who enjoy supporting our unique activities.  The Paintball Benefit gets bigger and more fun every year!  We always look forward to welcoming new people to the event!  Everyone does 5Ks or Event Galas to promote their causes.  While we think that it is great, we wanted to do something unique and fun for everyone.  Andy is one of my closest friends from growing up and when he found out that I was battling a brain tumor, he wanted to create a unique event to support the young organization I had created, mAss Kickers Foundation.  He brought in his significant other, Angel Bureau to organize the event logistics.  They do a great job every year recruiting players, volunteers, securing sponsors, and raising funds for mAss Kickers Foundation!  We even created a website specifically for the the event in the hopes of expanding the event to other venues in different states.  We are very excited about the potential for growth!  IT IS A VERY UNIQUE AND FUN EVENT FOR EVERYONE!

After the paintball event, I traveled to Dallas, TX to participate in the National Association of Asian American Professionals.  It was only the second time I’ve attended one of their events.  In college, I was very involved with the Filipino-American and Asian American communities.  I’m looking forward to getting re-involved to address oncology disparities in the Filipino-American and Asian American populations.  Stay tuned for Part 2 of this post from Dallas!

Blog and mAss Kickers news18 Jun 2015 07:47 pm

La Mesa, California USA – On June 6, 2015  Nine teams that consisted of physical therapy students, physical therapists, health care professionals, cancer survivors, and community members gathered at Helix High School Sports Fields for a unique event to support mAss Kickers Foundation’s 2015 Charity Kickball Tournament.  Teams competed for the coveted Championship P.I.M.P. (Pugilistic Individual Mass-Kickn’ with Pride) Chalices.  Check out some of the picture!

The event was created to support mAss Kickers Foundation’s “How to Kick mAss” International Thrivership Program.  Internationally, cancer survivorship is not as prominent as it is in the United States.  mAss Kickers Foundation’s goal is to educate the future healthcare professionals, current healthcare professionals, and patients to dispel the negative stigma that cancer is a death sentence.

mAss Kickers Foundation firmly believes that the global stigma of a tumor/cancer diagnosis as a death sentence needs to be addressed and that tumor/cancer thrivers can be both a symbol and voice of hope in dispelling the myth that cancer is a death sentence.  Over the past two years, we have taken survivors to: Tokyo, Japan; Manila, Philippines; Seoul, South Korea; and Singapore, Singapore to meet other survivors in different countries AND lecture to health professionals/oncology researchers about the survivor experience.  Plans are in the works to take survivors to meet other survivors and present in Brussels, Belgium later in 2015.

988595_10152945449415662_5629170244804335760_nPlease consider a tax-deductible donation and support your favorite Kickball Team or Kickball Player to support our plans to educate the WORLD about a proactive life after a tumor/cancer diagnosis. We are looking forward to visiting another continent!  No other organization is doing this yet!  Be a part of something new and exciting!  Any thing will help!  We are almost to our goal!

2014 asia and Blog and mAss Kickers news02 Nov 2014 01:13 am

Dragon Hill Lodge -38th Parallel Healthcare Symposium Day 1

Blog and housekeeping and mAss Kickers news14 Sep 2014 11:14 pm

Last weekend I had the opportunity to go to Austin, Texas to check out the Brain Power 5K race/walk created by Kelly Bollinger.  It was great because I got to reconnect with my friend, “Hawktober for Brain Tumor Awareness” founder, and fellow brain tumor survivor Matt Cotcher I was also excited to reconnect with my other friend, Runi Limary.  Another brain tumor buddy, Iram J. Leon was kind enough to host me for the weekend.  J. is a very accomplished runner and has garnered national media attention.   He has won multiple races after brain surgery and qualified for the Boston Marathon earlier this year! He picked me up from the airport on Friday and we went directly to one of my favorite restaurants in Austin so I could have some brisket tacos.  I was first introduced to brisket by a friend in San Jose, CA years ago.  When I learned about the lengthy preparation of brisket, I became a big fan of Texas BBQ!  They take their grilling very seriously in Texas!  After college, I proudly held the tittle of “Grill Master” after years of “apprenticeship” watching my dad and my housemates in college!  I was told that I have to check out more Texas BBQ places the next time to get an idea of the different types of BBQ! Later that evening our friend Chris invited us to an acrobatic-equestrian-Cirque du Soleil-type show, Gladius.  Physical displays of skill always impress me!

DSC_1541The next day J took me to an Ultimate Frisbee Tournament. I was surprised that teams from all over Texas came to this tournament!  On the way back, we did a “drive by” of the University of Texas Campus in Austin on a Football Game day!  I def want to check out an authentic Texas tailgate before a football game.  I’ve been to tailgates in Ann Arbor, Columbus, East Lansing, Chicago, and Pasadena.  I want to go one for a South Eastern Conference game and a Pac-12 game.  I always enjoy “geeking out”, so J took me to the Texas State Capitol in Austin!  After the trip to the capital, we stopped by this really cool graffiti art wall where artists paint whatever they want on the walls!  Here are some pictures from the day!  Instead of lunch, we decided to get some ice cream, so we went to another Austin staple,  Amy’s Ice Cream.   For dinner, we met up with Chris to catch up and watch a little football.  Later that evening, J went out while I stayed in to watch the Michigan-Notre Dame football game.   I am addicted to Michigan Football.  My general mood in the fall is sadly dependent on the outcome of the Michigan football games.  The past few years I have been pretty grumpy!  I’m learning to let go!  Sadly, it was an early night for me because Michigan got demolished, which in hindsight was probably a good thing since we had to get up early for the Brain Power 5K.

Kelly and Runi have done a great job organizing the Brain Power 5K.  I was very impressed with the turnout and growth of the event!  In a short time it has grown from 300 participants to over 14 hundred!  It was great running into Matt at the start of the race!  When I first found out that he writes about sports, I was intrigued.. We got along well from the very beginning.  The mAss Kickers Foundation Support Campaign, Rock Da Hawk is very closely tied to the “Hawktober for Brain Tumor Awareness” Campaign.   Matt has taken the mohawk campaign and run with it!  I support “Hawktober ” 100% because mohawks are hard to ignore, and ANYONE can participate in the campaign! Anyways, I had to explore the Brain Power 5K venue because I was amazed that the event was actually created by survivors and run by survivors!  You don’t see that too often!  Here are pictures from the Brain Power 5K event!   J organized one of the larger teams and had the top 3 male overall finishers and the top 3 overall female finishers!   I was honored to be a part of “Team Scarecrow” so I created the video above!  After the race, we went out to eat at another Austin restaurant that was kind of like a Denny’s.  An omelet and pancakes for dinner, is always filling!  The people in Texas are so hospitable!

texas state pt The next day, my friend Gayle picked me up from Austin, and took me to Texas State San Marcos to lecture to Physical Therapy Students about my experiences as a young healthcare professional turned brain tumor patient!  I always enjoy lecturing to students because they always keep me on my toes and ask some of the more interesting questions.  I did not realize how far San Marcos was from Austin.  Gayle had to pick up her kids from school so I had to find a ride to Austin.  The last time I spoke at Texas State, another one of my friends drove me there, and back.  I thought that I could simply take a Uber car from the school back to Austin.   I was wrong.  There were no Uber drivers in San Marcos plus I found out that a taxi would be ~$100 to take back to Austin.  I was so lucky that Dr. McDowell was able to give me a ride back to Austin on her way home from San Marcos!   Dr. McDowell dropped me off at a restaurant and I met up with Gayle again and another survivor friend, Deb.  I always enjoy meeting other survivors, even survivors of different types of tumors/cancer. There is always an unspoken bond that “connects” us.  I always have a great time in Austin and look forward to returning.

I have some more cool stuff in the works.  I just confirmed that I’m speaking at a military healthcare conference in Seoul, S. Korea in November.  They want me to:

  1. share my story as a healthcare professional turned oncology patient
  2. present the benefits of physical activity/exercise in a post oncology treatment population.

I have to alter my presentations for a military and Korean audience.  This will be exciting!  I’m thinking about going to S. Korea early to experience Halloween in another country… I’ve had some pretty exciting Halloweens in the past, but that is a story for another time… Seoul here I come!  I wonder how people will respond to the “mAss Kicker Mobile” there…  it was a different in experience in Japan and the Philippines last time.

 

 

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